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I am a 24 year old living with Huntingtons Disease.

HD is not a rare disease, but a rarely known disease.  My goal is to be an advocate and teacher of HD.

In this course you will learn about my journey with HD, how I strive to find joy in my struggle, and continue to choose joy and happiness. 

You will also learn about what HD is, genetic testing, the HD Parity Act, advocacy, clinical trials,  treatments, and what you can do to find  cure.


Hope for today,  Help for tomororw.

i would love to have you along for my journey.

Thanks for considering.



The Team

Alex       0 kudos

Hello everyone, I'm a teacher for this course and I can't wait to learn with all of you.

More Information

About Me:

Hi my name is Alex Boothby and I am a 23 year old living with Huntingtons Disesae.

I try to find joy in my struggle and live with passion. HD has positively affected my out look on life, and I strive to portray that in this course and my blog. I share  about the hard of my life and HD ,but also the good.


In March of 2014, when I was officially diagnosed with HD, at 23 years old, which is 12 years earlier than the average age of onset, I had so many thoughts going through my head. I decided to write out my thoughts and feelings and share them with the world. It was the best decision I could have made.

The responses I received where amazing.




Now with all pain cause by HD, I could stay In bed, and be upset, but I believe that does no good. So I get up each day and live. I take  in all the good moments and things. I live with grace, strength, and passion, and I have faith and believe that miracles happen.





Status: Self-paced

Duration: 6 Weeks